It's not easy being Layla

Today is one of those days.  One of those days where it's not easy to be the parent of a child like Layla.  It's days like today that I realize just how stressful her health issues can be. 

She's been recovering from strep throat (not sure how she picked that one up) and stopped antibiotics on Wednesday.  That night, we forgot to give her medicine to her and she was up all night long coughing (no, we never made the correlation that she might go to sleep if we gave her some medicine).  The next morning, she had a seizure or two, they were small.  We didn't think anything about it.  However, she had more last night and quite a few this morning.  Those, along with a small fever, have me worried.  Then she threw up all of her medicine, including anti-seizure meds she needed to keep down, about 2 minutes after I gave them to her.  That's always fun because you never know if anything stayed down so do you need to or even can you give her more meds...and if so, how much?  A full dose again or cut it?  But by how much?  Arrrggghhh!

Today was supposed to be a day when her nurse, Sharon, comes to care for her so I can get out, usually with Addie in tow.  But those plans changed right after Sharon showed up and Layla decided to throw up everything in her little belly.  I think she took sweet Sharon by surprise but really that was mild compared to most incidents with Layla.  She has since had more seizures, which have taken on a weird quirk:  she starts seizing after a big yawn.  Only Layla. 

Needless to say my plans have drastically changed from the nice day out I thought I would have.  But that's not what gets me down; it's the not knowing what's up with Layla and what it will take to fix it.  That's the worst feeling in the world: the not knowing.  She'll never be able to say that something hurts or feels yucky or she just doesn't feel well.  It's always the guessing.  Is it this?  Is is that?  Is it a combination of both or maybe not any of those at all?  It's stressful to say the least.  Soon we'll leave to go to the pediatricians office to see what she has to say.  Here's hoping for a quick and easy fix! 

UPDATE for you followers:  Addie just published this post for me without me proofing or anything.  How kind of her.  I feel more gray hairs popping up.